The following piece was originally published to ChaiMommas.com and republished here with permission.
You know when you’ve been craving something for so long, but you can’t quite put your tongue on it? Then randomly, it pops up in your life and you can’t live without it? For me, that’s “Brown Mom,” a new podcast hosted by award-winning writer, editor, pediatric cancer crusader and badass mom Raakhee Mirchandani. I honestly didn’t know how much I needed Raakhee in my ear until now and it couldn’t have come at a better time.
Mom-life is hard in general, let’s be honest, but 2020 has been a serious roller coaster. Not only are we moms, but so many of us are working from home, homeschool teachers, chefs of every meal, and the housemaid that procrastinates folding laundry. It’s pure overwhelm most days, but every Tuesday for the last five weeks, I have had the pleasure of listening to Raakhee speak to other brown moms, who like us, are more than just moms. I feel so heard, so seen.
Raakhee is a breath of fresh air. She says what I’m thinking and has me nodding my head so hard. Her candid conversations with women including Hitha Palepu and Reshma Saujani make us smile wide and LOL while our children run in the background (thank goodness for Airpod pros). So far, she touches upon body hair, culture, raising children, single motherhood, fast failure, and a variety of desi foods that makes me crave mom’s cooking.
I had the opportunity to interview the host and learn more about “Brown Mom,” and it only made sense to start with rapid-fire:
What dish reminds you of home? Sindhi curry and rice
Songs that lift you up? Beyonce’s “Brown Skin Girl,” Dolly Parton’s “Coat of Many Colors,” “Hawa Hawaii” from Mr. India, and any DJ Rekha set. I’ve also been known to get hype to “Ek Do Teen,” Madhuri is a queen and that song is pure fire.
What book are you reading right now? I’m listening to President Obama narrate “A Promised Land” and re-reading Supriya Kelkar’s “American As Paneer Pie” to prepare for her upcoming “Brown Mom” recording!
Jeans or Leggings? Leggings, specifically Athleta’s Elation Shine Tights; make me look like a superhero. (I don’t button things around my waist unless absolutely necessary.)
Pakora or Samosa? Samosa.
1) What inspired you to start “Brown Mom?”
Does a hairy upper lip count? Because between my middle school moustache, high school invisibility and growing up desi in the ’80s and ’90s in suburban New Jersey, well, you could say it was all very, um, inspiring.
Our voices have gone unrecognized for a very long time. I don’t see myself, my mother, my friends, my daughter and my sisters reflected back at me very often. And to be honest, I’m over it. Also, we can change that. It’s the reason I went to journalism school. It’s why I ended up writing children’s books. I’m at the stage now where I’m no longer waiting, I’m doing: writing books, essays, starting podcasts and pitching ideas to studios.
‘Brown Mom’ is a manifestation of that shakti. These are the conversations I have with friends all the time and I’m amped to be able to share them more broadly. Being able to trade experiences and insights with other Brown women is so good for my soul. I was nervous to start the podcast; I still am. What if no one likes it? What if people don’t listen? What if people think I’m dumb?Self-doubt is pervasive and powerful, but I’m doing it anyway.
I love hosting this podcast. I love these conversations and the space we are creating together. It’s worth every bit of the fear.
2) What message are you trying to deliver with this new platform?
The message is simple: We are here. Brown voices, voices of the South Asian diaspora, are here. And we will gather, share, build, heal, laugh, repair and create together. Join us!
I’ve been able to snag some pretty dreamy guests already and I’m very grateful. I talked to Reshma Saujani about bravery, Hitha Palepu about hair, Nisha Vedi Pawar about faith and Poorna Jagannathan about “Never Have I Ever“ and desi names. And this season is just getting started, so stay tuned for some other fantastic guests and conversations.
But I pray on the dream guests list daily. Here you go: Vice President Elect Kamala Harris; I’d love to talk to her about Shymala and ancestral lessons, Meena Harris for a conversation about ambition and her new book “Ambitious Girl” and Mindy Kaling so we can talk about 100,000 things including sweat pants, dosas, brown Hollywood and her skin and soul care routine because her glow and light is so real and that’s some deep soul level care she’s got going on. And, of course, Gitanjali Rao, student, author, science enthusiast and Time’s first-ever “Kid of the Year.” (I’d also *really* like to talk to her caregivers!)
I’d also love to have my friend Jameela Jamil come on to we can talk about body image, Padma Lakshmi so we can chat about food, taste and ‘Taste the Nation,’ the cast of Netflix’s ‘Bollywood Wives’ show so we can talk about accents ( I have *a lot* of questions for them). Also: Stacey Abrams, DJ Rekha, Hasan Minhaj, Tan France, Robin Arzon, Jayshree Ullal, Ravi Patel, Valarie Kaur, Deepica Mutyala, Aparna Nancherla, Lilly Singh, Monika Shergill, Rupi Kaur, Jay Shetty, Samata Nara, Payal Kadakia Pujji and Nina Davuluri, among many others!
4) You have such a beautiful outlook on life, which we hear in your podcast and candid conversations with other moms. What’s one piece of advice you can give to other moms?
Thank you! The connection is the thing that really lights me up, so while I’ve thought about doing this podcast for a while now, it’s poetic that it all came together during this year where we are distanced and isolated from the people we love.
I’m not great with advice: I’m neither a parenting expert nor an expert parent! But the things I keep coming back to, over and over are these two. Sorry, I know you asked for one, but I’m pretty shit at following directions:
Make time for friends and make time for yourself. Whether that’s a text chain with your besties or a WhatsApp group with the folks who make you laugh, make time for non-parenting related connections. And take time for yourself, whether that’s a run, a walk or just sitting in a spot, on a park bench, reading a book or listening to a podcast for 20 minutes.
Let’s include partners, caregivers, dads and mamas when we’re planning activities, school events, birthday parties and more. The extra work — and let’s be real here, there’s a lot of damn extra work — can’t continually and consistently fall on women. So if there’s a school share that needs to be scheduled around Vaisakhi or Diwali, emails that need to be sent around extracurriculars or even playdate scheduling, alarms that need to be set for the 4,000 Zooms your kids have to get on for remote learning, well, let’s take all that stuff off the “mom plate” and serve it up for all the caregivers to share.
For more Raakhee, you can find her on Instagram (@Raakstarwrites) and, of course, every Tuesday on “Brown Moms,” which airs on all podcast platforms.
April 25, 2023May 11, 2023 9min readBy Usha Sookai
Dear Durga: A Mom's Guide to Activate Courage and Emerge Victorious by Shanita Liu | Photos Courtesy of Shanita Liu
In her new book “Dear Durga,” author and life coach Shanita “Shani” Liu takes a different approach to self-help. Liu guides readers by providing a courageous framework. She writes to the Hindu goddess Durga Ma, who is a symbol of courage to Liu. Durga Ma represents power and protection in Hinduism.
Liu ties together the personal. She shares her experiences in witnessing fear-based patterns from her own Guyanese family and culture and noticing them in herself as a mother while proving coping strategies as a life coach. In this candid conversation, Liu explores the journeys of motherhood, writing, overcoming fear and leading future generations by example.
Where did the idea for this book come from?
It came from a diary entry I wrote in 2018 or 2019. I wrote that I was going to write a book called “Dear Durga.” I created a folder on my computer and it said “Dear Durga Book” and it was almost like I was setting the intention. I didn’t know what it was going to be about, but I did know that Durga and writing to her was an important part of my journey. And so I just had this intuitive feeling that I was going to be able to share this story one day.
In 2021, we were going through the pandemic, I just had my third child, and Durga was very much like, ‘okay, now you’re going to go write your book.’ And I was like, ‘Wait, what? I’m sorry. I’m, like, trying to navigate motherhood again and my business and everything else that was going on.’ And she was like, ‘no, you’re going to participate in this writer’s workshop. You’re going to learn how to write a book proposal. You’re going to enter it into this contest. You’re going to win the contest, and you’re going to write a book.’ And I thought she was nuts. And all of my fears started coming up – who am I to do this, I can’t do this, I’m not enough, what am I writing about?
I had to muster up the courage to write this book. And so Durga was a catalyst for me to call on my courage and say, ‘it’s time.’ This moment made me realize what I’ve been doing professionally for the last seven years is walking folks through my framework to help them activate their courage. So even though I was terrified, I realized this book can take the personal and the professional pieces of this puzzle and really put it all in one place.
When you say that Durga was your driving force for action, do you mean spiritually and religiously, or something else?
For everything, yes—emotionally, spiritually. In 2015, when I was falling apart and embarking on these major life changes in my life, she came through. It was the catalyst for me to say, “I have to start breaking myself out of these fear-based mindsets and really start entering these new phases of my life with courage and disrupting old patterns.”
Describe the writing process for this book. How did you find that courage to move past your fears?
Definitely writing to Durga. Knowing that the book was going to be about this journey of me connecting with my courage, I had to accept the challenge. I’m a writer by training. I’ve been writing my whole life. I was an English major, so I knew I could write, but I had to sit down and excavate six years of my life. I had to go into my journals from 2015 up until when I started writing the book at the end of 2021.
It was wild to re-experience myself going through these various obstacles, these discouragements, these discomforts and then find the strength through this courageous energy I had within me, to take these small steps and overcome each obstacle. The excavation of my own life was an interesting part of the process for me to get clear on the themes based on what I remembered.
The writing process was very spiritually and emotionally transformative because I’ve been doing all this work with my own courage that I sort of had to channel it with my own creativity to write and to marry what I had been doing professionally and what I had been going through personally. So, once I formed the book proposal, the blueprint for what I was writing, and submitted it to the Hay House contest, I then learned I won the runner up prize, I was able to write the manuscript pretty quickly. At that point, I was like, ‘okay, I know what I’m writing about now. I know I have the courage to do it.’ Durga was right, after all.
Walk us through the four steps for somebody who is just hearing about this and is interested in your way of approaching courage.
I have a Courage Kit framework, and I’ve had to walk my talk through it, but I’ve used it with hundreds of clients. It’s a four-phase process to support you with activating your courage and keeping it alive. The first phase is activating your courage and calling it in, identifying your courage metaphor, how to access that energy and how to commune with it and build a relationship with it. The second phase is about aligning with your needs because, as mothers and women, we don’t ask ourselves what we need due to this societal expectation and cultural conditioning. That’s an important part of emerging victorious. Victory is important because it means to attain fulfillment. Being victorious means having the courage to honor yourself so that you can be victorious, whatever that is like for you. The third phase is alleviating stressors so you can feel your best. Then the fourth phase is taking action so you can start making baby steps towards your goals.
How was this journey impacted by being Indo Caribbean? What role did your culture play in this?
The role that my culture plays is huge. In the book, I talk about the legacies of sacrifice that I come from because of indentureship. I’m three generations removed from that history of colonizers exploiting indentured laborers. When you come from these legacies of sacrifice, fear-based mindsets and behaviors accompany it. When I was acting from a place of martyrdom and sacrificing my own needs, I realized I learned that from the women who came before me, who learned it from the women before them.
When you zoom out you realize this has happened across cultures. Why are women in our culture asked not to use our voices? Why are people telling us to shut up, play small and don’t cause trouble? Our voices have been collectively suppressed, and over the last few decades, we’ve been liberating ourselves. We’re going to honor all parts of ourselves and express ourselves as we need to, and we need courage to do that.
Why dedicate the book to your younger self?
I had to dedicate this book to my Little Shanny because her voice was suppressed, and due to cultural and societal expectations, she wasn’t allowed to be her fullest self. She’s very lively and creative. In the book, she is writing and we make rap songs and other things to call on our creativity. This book is an honoring. As I was honoring all parts of myself and healing my own emotional wounds, I was liberating her at the same time.
How would you describe your relationship with Durga Ma? How can others who are not Hindu achieve that sort of relationship with their metaphoric courage figure?
Regarding Durga and myself, I don’t say, ‘I got this courage metaphor, now help me.’ You have to build a relationship with it. In the last eight years, I’ve been able to build a solid relationship with her where my courage is almost automatic. If I feel or think about fear, my automatic courage alert starts going off. The stronger connection I build to her, the stronger our relationship becomes, and the more self aware I become about making courageous choices.
But, in the introduction of the book, I clarify that folks can use the Durga archetype or work with Durga whether they are Hindu or not. It doesn’t matter what walk of life you come from because she embodies victory over evil, maternal protection and an unapologetic courage that we need for fulfillment. So I encourage folks to connect with her because people who are meant to resonate with it will resonate with it and if Durga doesn’t resonate with you, you understand you have this courageous wisdom inside you. If telling my story about the way it looks for Durga and I, inspires somebody to ponder a relationship like that, that’s great! In the end, I just want folks to walk away feeling comforted and equipped with tools to be their most courageous selves.
How do you take this idea, this archetype, and apply it to yourself or anybody?
We’re human beings and I think sometimes we just need something visual or tangible to hold on to. Sometimes I need an idea or person to help ground what’s coming up for me, so the metaphor is really helpful because I can visualize and interact with it.
The metaphor offers information because when you’re scared and fear is clouding your judgment, it’s easy to default to doubt. Your courage metaphor offers information, encouragement or directions – targeted guidance. As long as you connect, communicate with and build a relationship with it, it will help you. That’s why I use “Dear Durga,” channeled writing, as a common thread throughout the book, it’s one modality that works. If this modality doesn’t work for you, then try interacting with it differently. But at the end of the day, regardless what modality you find, you can leverage that metaphor’s information to inform your next step.
How did motherhood and becoming a mother play a role in writing this book and also your career as a life coach?
I started life coaching when I became a mother. I was pregnant while I was in my Life Coaching Certification Program, and Durga Ma showed up just a few months before I found out I was pregnant. I think she knew I was going into the next phase of my life, and I couldn’t continue on my own anymore. So motherhood was a huge act of courage for me. I left a toxic job so I could embark on motherhood and begin making professional choices that would support me once I became a mom.
The beautiful thing about motherhood is that you become a different person – you change. Your ability to care, give, create and grow changes. Motherhood informed the work that I did with other women in their mind, body, spirit wellness and it forced me to focus on my own wellness. Also, Durga Ma just happens to be this maternal archetype, so maternal protection and nurturing felt important to my process as I was healing wounds. This is a powerful energy that can support other moms because we need support. We’re caring for little human beings and, as it is, most moms are under-resourced. Courage is a resource that doesn’t cost any money, that can help with life’s challenges.
Did you have to endure little battles with people around you to gain support for the kind of work that you do?
I don’t think anyone around me discouraged me. The battle was within myself and having the courage to say, ‘I’m this life coach who’s going to focus on courage.’ I had to get over my own impostor syndrome, self doubt and fears that were weighing me down about coaching with this mindset among many other coaches. When I started, I was focusing so much on self care, but then I realized it’s so hard for women to self care because we have a fear of doing it. Everything goes back to fear. That’s why I realized the root of all of this is coming back to our courage.
As an Indo Caribbean mother, there can be a lot of expectations. Did the courage framework also help with that?
Absolutely. Most moms are givers, especially those of Indo Caribbean heritage. We saw our moms constantly sacrificing everything so we can have high-quality lives. But this trajectory of motherhood and bringing my courage in through my own framework forced me to ask for help, set boundaries and put my needs first. Obviously we put our children first, we’re always protecting them. But I began to honor myself. To realize I can honor myself and my needs while managing motherhood felt really important. But that doesn’t happen overnight. It takes time to do that because we’re breaking out of old patterns from our family’s example. This is why, in ‘Dear Durga’ I tell a lot of stories about my grandmother, because she was a major influence in what I thought motherhood should look like.
Can this in turn create a healthier experience for the child?
Absolutely. You’re a demonstration to your children. Your children do not do what you say, they do what you do. I have daughters and a son, and I don’t want my daughters growing up thinking that when they get married or have kids and start a family, they have to clean the house all the time and never experience joy. I want them to see that Mommy can experience joy and fun and she can work, and she can do these things. It may not look perfect, but they can see that I can do all of these things without it costing my mental health and sanity.
Do you have a favorite story that you use in this book for reference?
It’s not my favorite, but the story about my grandmother’s death and the shock that my family and I felt stands out the most. She was the matriarch and anchor to our maternal line. So, when she passed away, it created chaos. As a little girl, it wasn’t until she passed away that I questioned: ‘Who was she? What was her life like?’ It allowed me to see what my grandmother was like outside of being a grandmother. When the funeral happened, I heard stories about how she sacrificed, whether it was for her education or her family. It gave me perspective on everything that went into my family coming to the U.S. But it also made me think, now that I have the privilege and the opportunity to change things, am I going to take advantage of that?
Liu champions personal growth and overcoming fear, emboldening us to find our courage, be vocal about our needs and refute the age-old myth that Indo Caribbean women must struggle to be successful. “Dear Durga A Mom’s Guide to Activate Courage and Emerge Victorious” is now available for purchase.
May is an important month for mothers around the world as we get to celebrate motherhood for Mother’s Day and support mental health for Mental Health Awareness Month. It is also a month in which a week is dedicated to honour maternal mental health before, after and during pregnancy. To honour this beautiful month, I would like to explore motherhood as I have experienced it as an South Asian, immigrant mom — the magic, the struggles, the mental health challenges, the community expectations — and share how I have reached the most comfortable, confident version of myself as a mother.
12 years ago, on a very hot, humid August morning, after going through a few years of unexplained infertility and then finally getting pregnant, I was rushed for an emergency C-section and my tiny, but very feisty, daughter was handed to me. As I held her in a severely drugged-up state, very much disappointed in my body’s failure to deliver naturally, I felt a rush of the most beautiful, gut-wrenching, fierce, protective love I had ever experienced. In the hours following her birth, I also experienced major confusion and anxiety every time she cried endlessly; I didn’t know how to soothe her.
I grew up listening to my mom, grandmothers and aunts talk about the beauty and miracle of motherhood, but no one ever talked about the extreme sleep deprivation, the mental and emotional breakdowns and the sheer physical exhaustion. I had seen most moms in my very traditional, Pakistani family, sacrificing their own needs for the comfort of their children. In fact often, I would be confused at how proud my grandmothers were for sacrificing their health and mental peace to raise their families.
After moving to Canada I repeatedly witnessed the same thought and behavior patterns in other South Asian maternal figures. I’ve come to the conclusion that this is a cultural thing, especially among the older generation! They love to talk about the beauty and magic of motherhood and glorify the rough parts of this journey with a kind of toxic positivity. South Asian women, I find, generally don’t like to discuss the struggles, the vulnerability and the mental load of motherhood. Yes, motherhood is magical, beautiful and one of the biggest blessings but also it might probably be the most difficult thing you will ever do! In retrospect I do feel, had I heard healthy discussions about the mental and emotional challenges of motherhood, along with its privilege and beauty, I would have been much more prepared for this magical, roller coaster journey!
The mental health challenges, the invisible load of motherhood, the continuous mom guilt, the overwhelm, the self doubts, I experienced all of these during the happiest time of my life. And I felt extremely guilty for having these feelings! Was I not supposed to have that ethereal new mama glow and calmly enjoy this new phase with ease and joy? My overwhelm and anxiety as I protectively held my five-pound, feisty baby girl just felt wrong! It made me doubt myself as a mother.
As an immigrant mother, one of the hardest things I have had to do is to break away from, and unlearn, so many culturally-acquired behavior patterns and expectations. It is so important to acknowledge the fact that mamas need to be vigilant about and take care of their emotional and mental health in order to be fully intentional and engaged in raising their children and taking care of their families. Thankfully, the thought patterns are evolving and finally the South Asian community has started having discussions about mothers’ mental health issues and acknowledge that motherhood, though absolutely precious, is exhausting, rough and can sometimes leave one questioning their sanity.
After the initial years of motherhood, I started researching and reading on mental health and South Asian behaviour patterns. My observation and research has led me to a point in time where I can proudly say that I am the most comfortable I have ever been in raising my children. I have come to the realization that this will be the most fulfilling, but also the most daunting and exhausting thing that I will ever do. I have also come to a very solid conclusion, the better my headspace and mental health is, the better I will be at being the best version of myself for my children. I really want my children to see me making my mental health a priority so that they learn that their mental health is also as sacred as their physical health.
Once I realized how pivotal my own mental health was for my family’s wellbeing, I became more mindful about prioritizing my mental health. These 10 mantras have really helped make a difference in my mental health:
It is not normal to feel excessively overwhelmed and anxious all the time just because you are a mom. Reaching out for help is not a sign of weakness. Talking to your doctor about your sense of overwhelm is a great place to start. Accepting medical intervention (meds) and therapy are an important part of my parenting journey; they do not make you a weak or bad mother in any way. Rather it makes you a braver, better parent!
Motherhood is not always glorious and rosy as most of us have been made to believe. Like any other relationship, it will also have its ebb and flow. It will sometimes be chaotic, messy and hard and that is ok!
They say, it takes a village to raise a child and that is so true! In case of immigrant families, a lot of times their village is far across the oceans so what do you do. You mindfully try seeking out a village of like-minded families/people that share similar values and beliefs as your own. And then you help each other out. In other words, when offered, graciously accept help from that elderly neighbour, a family friend or a distant relative. They probably have gone through this busy season themselves and realize how exhausting and isolating it sometimes can be.
In today’s world, many of our decisions are driven by our favourite influencers, mom bloggers and social media personalities. Majority of them curate content that just spells perfection and beauty! From a beautifully arranged, tidy house, to an impeccably put together, happy mama serving fresh, organic meals in her tastefully-decorated, minimalistic kitchen; we know very well that social media can be unrealistic and shows only the beautiful parts of the journey. Yet most of us feel this immense pressure to be perfect and be the providers of the absolute best for our children. Honestly, in my experience, motherhood became so much easier, smoother and calmer once I let go of my exhausting efforts to be the perfect mother! Once I accepted that there is no such thing as a perfect mother — only a mama who loves her children like crazy — I felt at peace and became way less anxious.
Most South Asian cultures measure the worth of a woman by her marital status and later by the success of her children. In the first few years of being a mom, I enrolled my tiny humans in as many different activities as I could in dreams of future success in education and careers. I was always running around planning things for them to do. The result was an extremely burnt-out mama with overwhelmed kids in tow. It has been quite a journey to learn that children will be at their happiest with simple routines and happy experiences. You DO NOT need to lug your family to fancy, expensive activities in order to prove your worth as a good parent! Children will remember simple, happy experiences where they can connect and spend time with their loved ones. A simple picnic in the park on a beautiful day, feeding the ducks at the local pond, visiting the farmers’ market, going to the beach on a hot day, camping trips with other families, these are some things my kids consistently recall happily from their tiny human days.
Connecting with other moms going through a similar situation will make your journey less isolating, less intimidating and so much calmer. Culture tells mothers to be resilient and unwavering, and not share their vulnerability with others. That can be very isolating! After a rough night with a teething baby and a clingy toddler, nothing feels better than having a quick cup of chai over a phone call with another sleep-deprived, tired mama!
Mamas, you are being so generous and giving to everyone around you. Be kind to yourself too! Indulge in self care and take out time to do little things that bring you peace and joy. It could be a lunch date with a friend, getting nails done, doing a yoga class, taking a walk by yourself, listening to a podcast or going out for a movie. Remember your children are observing you all the time and will learn emotional regulation and self care by watching you do it.
Mom guilt is real and can be devastating for one’s mental health. Know that you are only human and the only way to learn about motherhood is by actually going through it. You will make mistakes and it is okay! Give yourself extra love and grace on those hard days. As long as our children see us apologizing, being respectful and loving and trying to be a better parent, it’s all good.
Taking care of one’s physical health will always help in achieving better mental health. Eating well, staying hydrated, learning some breathing techniques, moving one’s body, all these help so much when the days seem long and never-ending.
Motherhood, specially in the initial years will be physically exhausting. If you are like me, maybe you have also thrown your babies at your spouse as soon as he walks into the house and escaped to the washroom for a mommy time out! It is probably the busiest season of life for both you and your spouse and might leave both of you angry with and snapping at each other. Try to find little pockets of time when you and your partner can reconnect, away from the beautiful chaos of the tiny people you have created together. Something as simple as having a takeout meal together after kids’ bedtime can feel heavenly and therapeutic and recharge both of you for the day ahead.
So moms, I urge you to let go of overthinking, enjoy the present moment, go with the flow and savour the messy as well as the beautiful, uplifting parts of your journey. Cherish and protect your own mental health, reach out for help and support if the journey gets too isolating and overwhelming. For your children, will grow up seeing the beauty and wonder around them through the eyes of the most important person in their lives — their mom.
February 28, 2023February 28, 2023 4min readBy Sara Qadeer
Hi! I am Sara and I am a mom to a beautiful, neurodivergent child. This piece explores some challenges of parenting an atypical child in a typical world.
It is a sunny day in the summer of 2020 and I am trying to enjoy the only entertainment that has finally been “allowed” by our province. Parks. Sunshine was always free; scarce but free. I have eyes on my daughter, running and somersaulting, with that untethered quality they say she gets from me, while socializing with two girls her age from a distance.
All of a sudden, the distance called ‘social’ gets smaller and as I run and call out in vain my child has the kid in a tight and loving but forbidden hug. I understand that pandemic or no pandemic, physical space is a basic right but for my daughter, it falls under the ‘but why?’ category.
The next 15 minutes are spent apologizing to an exasperated mother asking me why my kid was not taught the dangers of COVID-19 and personal space. She is four, I tell her, she just got excited. At some point, I zone out and just let her say her piece. Some of it is in a language I have never heard before, complete with hand gestures and melodrama as if it was not a preschooler but Bigfoot.
Maybe later I will do the thing we all do; oh, I should have said that. Maybe I won’t. This is not the first time my kid has drawn public attention and it is not the last.
Six months later, we received a diagnosis for Autism Spectrum Disorder (ASD). After the reaction time (read stress eating and ugly crying) ended, we began our journey of raising an atypical child in a world that insists on the typical.
Textbook wise, neurodivergence includes Autism, ADHD, Asperger’s Syndrome, Dyslexia, Dyscalculia, OCD, hyperlexia and Tourette Syndrome.
I could write a book on my journey as a mom raising a child who is neurodivergent (ND). I will in due time and the first chapter would be, “Fighting for inclusion in a world insisting on exclusion.” If you ask any parent with a neurodivergent kid, they will tell you that it is not finances or the fear of the future bringing them down, it is just people. But that’s been the case since the dawn of time anyway.
If you are someone who is kind and inclusive but are confused by the jargon, read on for some guidance that will make you an ever-favorite ally and, well basically, just decent. It is just basic decency after all to be inclusive and kind.
If you have a kid on the spectrum for ASD or ADHD or any other neurodivergence in your social circle, the first step is to not stop being friends with their parents. Yes, that happens. Parents can get super isolated and alienated because their kid is a certain way. Give ND families a chance to breathe. Invite them to BBQs, ask them what their kid will eat, encourage your kids to include them — the whole nine yards.
There will be meltdowns, at birthday parties, at the mall, in restaurants. Sometimes the best thing to do is to look the other way. Ask the right questions. Rather than asking “what happened?” or “why are they doing this?”simply say “how can I help?” Maybe you can help with another sibling or give the child some space.
Do not equate a sensory meltdown or otherwise to a parenting failure or a lack of discipline. ND parents face a lot of judgment on those grounds. That is one of the top reasons they scoop up their kids and leave before dinner is even served.
The biggest challenge in our community is acceptance. There is a dire need to accept that around 30 percent of our population is neurodivergent. This includes adults and undiagnosed individuals. You and I might not even know if we are atypical, the world is just getting to know this word and what it entails. As for the South Asian community, neurodivergence is practically stigmatized and seen as ‘spoilt’ child behavior or ‘mom spending too much time at work, on social media, Netflix, sewing, knitting, kayaking…’ The list goes on.
It is 2022 and we are all trying to make space for people at our tables. This includes people who might not look or act or perceive the world like us. As a parent I have fears that all parents have, but somehow those fears have been heightened to exponential limits ever since my kid’s diagnosis came through.
How is she doing? Did someone bully her? Does she have friends? Is she included in activities? What if she says something silly and they laugh at her? What happens when she is older? Will she go to college? I should not be thinking that. I want to think about how much she is learning at school, what game they played today, what she and her friends talk about and all other typical mom things.
Except I am not a typical mom. And that is okay.
My child has wonder; she has innocence. I see things from her lens and her computation of the world is unique. The biggest misconception people have is of intelligence. A child with autism finds difficulty in processing social cues (like sarcasm) but otherwise they are as smart as you and me, if not more. Probably more.
Some days are hard but not all days are hard, and not every moment of that rough day is difficult. We, parents of ND children, do not keep obsessing over the fact that our kids are atypical; we binge watch the same shows, we have hobbies and interests and date nights and ‘me-time.’ Some days are magical and the most important thing for people to know is that Autism families are not looking for pity parties, just kindness and inclusion with a healthy sprinkle of understanding— an understanding of the atypical in a world only rooting for the typical.
